Disabled photography

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paul
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Hi, for the past year I've been struggling with a hand that has limited movement and now been to the doctors who has diagnosed Parkinson disease in the early stages. Really scared about the future but trying to be positive I'm only just turned 40!
Has anybody have experience with this disease in regard to their photography?
 
Sorry to hear that. It's never easy getting news that affects your whole life and that of those around you.

I've had two heart attacks, though not directly impacting on my photography, I have to do a lot of fitness and exercise so in a way it's probably enabled me to get to places carrying heavy gear that if I was less fit I'd maybe not go to. My main interest being wildlife can sometimes entail a lot of hiking about over hilly terrain etc etc.

As difficult as it is, keep positive and good luck.
 
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Can't offer any experience of photography with Parkinsons but just wanted to wish you well ... life has a habit of giving you a kick sometimes :(
 
Can't offer any experience of photography with Parkinsons but just wanted to wish you well ... life has a habit of giving you a kick sometimes :(


I usually kick it back with my DM's.:D You gotta look at life as though the glass is half full not half empty. Not always easy but i find it's the only way to go or you'd never go out of the house.
 
There are much better drugs available these days, compared to fifty odd years ago and they relieve at lot of the symptoms.

All in all, shouldn't be a lot to worry about for your photography.
 
Indeed, having had several visits to the cardiologist myself I know you have to fight back, but it doesn't stop the feeling that you've been kicked when you are first confronted with the realisation that you are in fact not indestructible. :)
 
I'm in my mid 60's and have had a stroke and three heart attacks and am currently FIGHTING cancer, there is no way that my 5D3 & assorted lenses are going to end up as door stops. As long as I am still alive when I wake up each morning it is a bonus, my camera is ready to do some work even though my legs are starting to tell me that they have had enough, where shall I go tomorrow ?

Fight it all the way.

To think that I was fit and healthy when I gave up smoking almost 20 years ago.
 
Sorry to hear of your news Paul.

I have Fibromyalgia which is related to the brain neurotransmitters and bad Osteoarthritis (grade 3 - 4) throughout my body for a youngish person (48 this year). From Subacromial Decompression operations to both shoulders where they shave the joints to open them up and as its a painful operation they give you a nerve block to relieve the pain. From my block they seemed to have damaged the nerves to my upper left arm and I have been recently having problems with the loss of feeling to my left hand and fingers. From a nerve test they have stated that the problems are un-related and they now need to move nerves from my elbow and into my forearm, as the nerves from elbow are causing the hand/finger problems.

I know we have different conditions, but regarding photogrpahy we plan gentle stroll days out, sometimes the wife plonks me on a bench and walks the dog. I have started to get into garden bird photography where I can leave the camera on a tripod all day by the back door. I had previously changed to Fuji for the lightness but they have delayed their longer zoom so have gone back to Nikon. When finances allow I will buy another Fuji just for going out. At present we just take the compact for gentle strolls. Use what supports you can to help take the strain and weight of the camera, clamps, monopds, tripods etc.............

I'm not a good photographer but enjoy what I do, which gives me great pleasure and with a little thought and planning you can still keep the photography bug going.
 
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Wishing you all the best Paul.

Not Parkinson's, but I do have a thyroid condition (Grave's) that affects my photography when it flares up - persistent tremors in both hands/arms. If you're aware of the effects that your condition has to you can start to compensate - in my case by moving to faster default shutter speeds and getting the tripod out whenever a shot was critical. Hobbies and interests are important to keeping you cheerful, mention your photography interest to your consultant (if mine are anything to go by they do like a positive discussion about something other than ill health as a change). If you can understand what is happening (and might happen) to your body and how that might affect your photography you can develop strategies to work round it.
 
I have Fibromyalgia which is related to the brain neurotransmitters and bad Osteoarthritis throughout my body for a youngish person (48 this year).

My wife is in a similar position. Fibromyalgia plus two spinal operations last year. It's hard to believe that a person who ran the London Marathon, as she did in 2004, now has trouble walking any more than a few feet. She is only 43.


Steve.
 
My wife is in a similar position. Fibromyalgia plus two spinal operations last year. It's hard to believe that a person who ran the London Marathon, as she did in 2004, now has trouble walking any more than a few feet. She is only 43.


Steve.

It's a bummer Steve, I had never heard of the word until about four years ago. Also, It's the other problems which come with it, that don't help. Another problem for me, it seems that due to the pain they are reluctant to carry out further operations for me, I need both knees replacing and my right hip. I'm seeing a Ortho Specialist on Monday for my arm and I have to see the Spinal Consultant on 1st June for my back problems.

I found it hard to come to terms with and being six foot and 17 stone not being able to carryout some basic household tasks. It used to bring a tear to my eye watching my wife mowing the garden, we have a self propelled mower so it's only a matter walking behind it! I just shout at her now that she has missed a bit:D
 
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That's a bummer mate. I'm sorry. It's not easy but as everyone says staying positive and giving a good kick back is the only way
 
It's really sad reading your stories but I'm not gonna let me give up on my life and hobby. In fact it's give me a fresh aspiration for the future

Thats the spirit!
 
Sorry to hear your news Paul - I've been disabled from birth (my disability is similar to a severe form of arthritis - and im 42 this year) - if you've got the right outlook on life then im sure you'll adapt - stay positive my friend and im sure you'll be fine (y)
 
just looking to get back into photography after a bad 18 months of chronic pain all over, chronic fatigue, hair loss, muscle twitching,severe sweating.GP Ran loads of test.all ok
i finally got to see a consultant who said it wasnt arthritis, they knew something was wrong. after lots of tests and a muscle biopsy.got a diagnosis IBM Inclusion body myositis
my immune system has decided my own muscles are like a foreign body. and is attacking and destroying my muscles, muscle loss muscle weakness,sudenley lost 21kg docs dont know why
cant walk much cant stand using a mobility scooter so its from this point im ,looking at photography ideas. Garden Birds, Macro, visit local Park, street photography mobility restricted and im not driving.good luck all and share your ideas.
i'm looking at doing a DIY photography Aid a rest pad for the camera on the scooter.
Regards. Chris
 
i'm looking at doing a DIY photography Aid a rest pad for the camera on the scooter.

If you need any parts made, let me know. I have a CNC router at work which can cut plastic sheet materials up to about 12mm thick and a laser cutter. There must be some sort of clamp/tripod head type of device which could be made to make things easier.


Steve.
 
To Paul, and others in this thread, I am so very sorry to read your stories. It is a reminder of how unpredictable life can be but it is amazing how resourceful human beings are in overcoming some of the things which are thrown at us.

I went through life thinking I would be invincible - I'd always been quite a serious athlete when younger and carried on running every day well into middle age, never having smoked and I barely drink. Our bodies have a habit of betraying us and it is so unfair at times. My problems are very mild compared to others in this thread. A couple of years ago I pretty much lost the use of my lower arms and hands - I couldn't do anything for myself, I couldn't wash my hair, tie my shoelaces, go shopping, or open my handbag or purse. I saw the neurologist and rheumatologist and it turned out that I had arthritis in my joints in my hands and also the bones in my neck had collapsed compressing the nerves to my hands and arms causing numbness in my fingers. Sometimes at night I lose the feeling in my entire left side. Holding a plate of food is fun and I get through crockery at an alarming rate. Some days opening bottles/jars, dialling a phone number, and filling a kettle will defeat me. Aside from that, legs are unaffected and I can still go for a run most days - however as I age that will change.

Although I improved (providing I don't exceed my limitations or else I'm back to square one) since then I have not been able to type (I can write, but no more than a sentence or two and it is pretty illegible), but I get by very well with voice activation software (Dragon Naturally Speaking) without which I could not manage. I was told I would likely have to give up my profession but of course you can't do that when it's your living. After a few months of rest I bought an Olympus OMD and that was a turning point. Micro 4/3 cameras are so small and light and they have amazing functionality - they have enabled me to carry on doing my job (providing I do not take more than two or three assignments per week) so I do think that could be an option for anyone with reduced mobility. The other good thing about these cameras is that they have excellent in body stabilisation so if you are quite shaky, like me, they smooth things out nicely. They have all of the lenses necessary to all kinds of photography. I am all for scaling down equipment size and weight.
 
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